Life Experience and Support Needs of Middle-Aged People with Severe Cerebral Palsy

Seolhee Lee, Ara Cho, Jihoon Jeong, Myonghee Lee, Eunhye Park

Research output: Contribution to journalArticlepeer-review

5 Scopus citations

Abstract

Purpose: The purpose of this study was to investigate the life experiences of middle-aged people with cerebral palsy and to explore support needs and strategies for enhancing their quality of life. Method: Individual in-depth interviews were implemented with 10 people with severe cerebral palsy in Seoul and nearby areas. Interviews were transcribed and analyzed, using constant comparative analysis. Results: Six main themes of independent living, health, economic life, job, sex/dating/marriage/childbirth/parenting, and leisure were delineated with 17 sub-themes. Conclusion: Issues in supporting people with severe cerebral palsy were discussed, which include (a) personal assistance service for people with disabilities, (b) economic support, (c) other health-related issues, and (d) educational support during school age and early adulthood.

Original languageEnglish
Pages (from-to)239-275
Number of pages37
JournalKorean Journal of Physical, Multiple and Health Disabilities
Volume64
Issue number4
DOIs
StatePublished - 2021

Bibliographical note

Publisher Copyright:
© 2021 Seorim. All rights reserved.

Keywords

  • aging
  • middle age
  • quality of life
  • severe cerebral palsy
  • support needs

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