@article{6a2335a944914d80ae7dc6c26ad1f61b,
title = "Korean Observational Study Network for Arthritis (KORONA): Establishment of a Prospective Multicenter Cohort for Rheumatoid Arthritis in South Korea",
abstract = "Objectives: The object of this study was to introduce the KORean Observational study Network for Arthritis (KORONA) registry with an emphasis on the design of the Korean rheumatoid arthritis (RA) national database, as well as to provide an overview of the RA patients who are currently registered in KORONA. Methods: The KORONA was established in July 2009 by the Clinical Research Center for Rheumatoid Arthritis (CRCRA) in South Korea. KORONA is based on a prospective protocol and standard, defined data collection instruments. Demographic and clinical features, laboratory and radiologic data, health-related outcomes, treatment side effects, resource utilization, and health behaviors of the RA cohort patients are recorded in a database. Results: A total of 23 institutions, which are about 38% of the rheumatologic departments at tertiary academic hospitals across South Korea, are part of KORONA. The quality control of data collection and management has been performed through annual monitoring and auditing, staff training, and providing standard operation protocol by the executive committee of CRCRA. As of 31 December 2010, 4721 patients with established RA were included in KORONA, because an annual survey had started to be performed in July 2010. Conclusions: KORONA is the first nationwide Korean RA-specific cohort and it will provide valuable {"}real-world{"} information for Korean RA patients.",
keywords = "Cohort study, Prospective study, Rheumatoid arthritis",
author = "Sung, {Yoon Kyoung} and Cho, {Soo Kyung} and Choi, {Chan Bum} and Park, {So Yeon} and Jeeseon Shim and Ahn, {Joong Kyong} and Bang, {So Young} and Cha, {Hoon Suk} and Choe, {Jung Yoon} and Chung, {Won Tae} and Minyoung Her and Hong, {Seung Jae} and Hong, {Yun Kyung} and Joung, {Chung Il} and Jun, {Jae Bum} and Jung, {Young Ok} and Kang, {Young Mo} and Kim, {Dong Yook} and Kim, {Hae Rim} and Kim, {Hyoun Ah} and Jinseok Kim and Kim, {Seong Kyu} and Kim, {Sung Il} and Kim, {Tae Hwan} and Kim, {Tae Jong} and Eunmi Koh and Lee, {Choong Ki} and Lee, {Hye Soon} and Jisoo Lee and Lee, {Sang Heon} and Lee, {Sang Hoon} and Lee, {Shin Seok} and Lee, {Sung Won} and Lee, {Yeon Ah} and Nah, {Seong Su} and Park, {Sung Hoon} and Sheen, {Dong Hyuk} and Shim, {Seung Cheol} and {Gyu Song}, Gwan and Suh, {Chang Hee} and Uhm, {Wan Sik} and Yoo, {Dae Hyun} and Yoo, {Wan Hee} and Yoon, {Bo Young} and Bae, {Sang Cheol}",
note = "Funding Information: A large, nationwide cohort of clinically well-characterized RA patients is a valuable resource for high-quality RA research ( 4,5 ). The KORean Observational study Network for Arthritis (KORONA) was established in July 2009 by the Clinical Research Center for Rheumatoid Arthritis (CRCRA), funded by the Ministry of Health and Welfare, South Korea. KORONA uses a prospective protocol and standard, defined data collection instruments. Funding Information: This study was supported by a grant from the Korea Health care Technology R&D Project, Ministry of Health and Welfare , Republic of Korea ( A102065 ). ",
year = "2012",
month = jun,
doi = "10.1016/j.semarthrit.2011.09.007",
language = "English",
volume = "41",
pages = "745--751",
journal = "Seminars in Arthritis and Rheumatism",
issn = "0049-0172",
publisher = "W.B. Saunders Ltd",
number = "6",
}