Korean Observational Study Network for Arthritis (KORONA): Establishment of a Prospective Multicenter Cohort for Rheumatoid Arthritis in South Korea

Yoon Kyoung Sung; Soo Kyung Cho; Chan Bum Choi; So Yeon Park; Jeeseon Shim; Joong Kyong Ahn; So Young Bang; Hoon Suk Cha; Jung Yoon Choe; Won Tae Chung; Minyoung Her; Seung Jae Hong; Yun Kyung Hong; Chung Il Joung; Jae Bum Jun; Young Ok Jung; Young Mo Kang; Dong Yook Kim; Hae Rim Kim; Hyoun Ah Kim; Jinseok Kim; Seong Kyu Kim; Sung Il Kim; Tae Hwan Kim; Tae Jong Kim; Eunmi Koh; Choong Ki Lee; Hye Soon Lee; Jisoo Lee; Sang Heon Lee; Sang Hoon Lee; Shin Seok Lee; Sung Won Lee; Yeon Ah Lee; Seong Su Nah; Sung Hoon Park; Dong Hyuk Sheen; Seung Cheol Shim; Gwan Gyu Song; Chang Hee Suh; Wan Sik Uhm; Dae Hyun Yoo; Wan Hee Yoo; Bo Young Yoon; Sang Cheol Bae

doi:10.1016/j.semarthrit.2011.09.007

Korean Observational Study Network for Arthritis (KORONA): Establishment of a Prospective Multicenter Cohort for Rheumatoid Arthritis in South Korea

Yoon Kyoung Sung, Soo Kyung Cho, Chan Bum Choi, So Yeon Park, Jeeseon Shim, Joong Kyong Ahn, So Young Bang, Hoon Suk Cha, Jung Yoon Choe, Won Tae Chung, Minyoung Her, Seung Jae Hong, Yun Kyung Hong, Chung Il Joung, Jae Bum Jun, Young Ok Jung, Young Mo Kang, Dong Yook Kim, Hae Rim Kim, Hyoun Ah KimJinseok Kim, Seong Kyu Kim, Sung Il Kim, Tae Hwan Kim, Tae Jong Kim, Eunmi Koh, Choong Ki Lee, Hye Soon Lee, Jisoo Lee, Sang Heon Lee, Sang Hoon Lee, Shin Seok Lee, Sung Won Lee, Yeon Ah Lee, Seong Su Nah, Sung Hoon Park, Dong Hyuk Sheen, Seung Cheol Shim, Gwan Gyu Song, Chang Hee Suh, Wan Sik Uhm, Dae Hyun Yoo, Wan Hee Yoo, Bo Young Yoon, Sang Cheol Bae

Department of Internal Medicine

Research output: Contribution to journal › Article › peer-review

52 Scopus citations

Abstract

Objectives: The object of this study was to introduce the KORean Observational study Network for Arthritis (KORONA) registry with an emphasis on the design of the Korean rheumatoid arthritis (RA) national database, as well as to provide an overview of the RA patients who are currently registered in KORONA. Methods: The KORONA was established in July 2009 by the Clinical Research Center for Rheumatoid Arthritis (CRCRA) in South Korea. KORONA is based on a prospective protocol and standard, defined data collection instruments. Demographic and clinical features, laboratory and radiologic data, health-related outcomes, treatment side effects, resource utilization, and health behaviors of the RA cohort patients are recorded in a database. Results: A total of 23 institutions, which are about 38% of the rheumatologic departments at tertiary academic hospitals across South Korea, are part of KORONA. The quality control of data collection and management has been performed through annual monitoring and auditing, staff training, and providing standard operation protocol by the executive committee of CRCRA. As of 31 December 2010, 4721 patients with established RA were included in KORONA, because an annual survey had started to be performed in July 2010. Conclusions: KORONA is the first nationwide Korean RA-specific cohort and it will provide valuable "real-world" information for Korean RA patients.

Original language	English
Pages (from-to)	745-751
Number of pages	7
Journal	Seminars in Arthritis and Rheumatism
Volume	41
Issue number	6
DOIs	https://doi.org/10.1016/j.semarthrit.2011.09.007
State	Published - Jun 2012

Bibliographical note

Funding Information:
A large, nationwide cohort of clinically well-characterized RA patients is a valuable resource for high-quality RA research ( 4,5 ). The KORean Observational study Network for Arthritis (KORONA) was established in July 2009 by the Clinical Research Center for Rheumatoid Arthritis (CRCRA), funded by the Ministry of Health and Welfare, South Korea. KORONA uses a prospective protocol and standard, defined data collection instruments.

Funding Information:
This study was supported by a grant from the Korea Health care Technology R&D Project, Ministry of Health and Welfare , Republic of Korea ( A102065 ).

Keywords

Cohort study
Prospective study
Rheumatoid arthritis

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10.1016/j.semarthrit.2011.09.007

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Sung, Y. K., Cho, S. K., Choi, C. B., Park, S. Y., Shim, J., Ahn, J. K., Bang, S. Y., Cha, H. S., Choe, J. Y., Chung, W. T., Her, M., Hong, S. J., Hong, Y. K., Joung, C. I., Jun, J. B., Jung, Y. O., Kang, Y. M., Kim, D. Y., Kim, H. R., ... Bae, S. C. (2012). Korean Observational Study Network for Arthritis (KORONA): Establishment of a Prospective Multicenter Cohort for Rheumatoid Arthritis in South Korea. Seminars in Arthritis and Rheumatism, 41(6), 745-751. https://doi.org/10.1016/j.semarthrit.2011.09.007

@article{6a2335a944914d80ae7dc6c26ad1f61b,

title = "Korean Observational Study Network for Arthritis (KORONA): Establishment of a Prospective Multicenter Cohort for Rheumatoid Arthritis in South Korea",

abstract = "Objectives: The object of this study was to introduce the KORean Observational study Network for Arthritis (KORONA) registry with an emphasis on the design of the Korean rheumatoid arthritis (RA) national database, as well as to provide an overview of the RA patients who are currently registered in KORONA. Methods: The KORONA was established in July 2009 by the Clinical Research Center for Rheumatoid Arthritis (CRCRA) in South Korea. KORONA is based on a prospective protocol and standard, defined data collection instruments. Demographic and clinical features, laboratory and radiologic data, health-related outcomes, treatment side effects, resource utilization, and health behaviors of the RA cohort patients are recorded in a database. Results: A total of 23 institutions, which are about 38% of the rheumatologic departments at tertiary academic hospitals across South Korea, are part of KORONA. The quality control of data collection and management has been performed through annual monitoring and auditing, staff training, and providing standard operation protocol by the executive committee of CRCRA. As of 31 December 2010, 4721 patients with established RA were included in KORONA, because an annual survey had started to be performed in July 2010. Conclusions: KORONA is the first nationwide Korean RA-specific cohort and it will provide valuable {"}real-world{"} information for Korean RA patients.",

keywords = "Cohort study, Prospective study, Rheumatoid arthritis",

author = "Sung, {Yoon Kyoung} and Cho, {Soo Kyung} and Choi, {Chan Bum} and Park, {So Yeon} and Jeeseon Shim and Ahn, {Joong Kyong} and Bang, {So Young} and Cha, {Hoon Suk} and Choe, {Jung Yoon} and Chung, {Won Tae} and Minyoung Her and Hong, {Seung Jae} and Hong, {Yun Kyung} and Joung, {Chung Il} and Jun, {Jae Bum} and Jung, {Young Ok} and Kang, {Young Mo} and Kim, {Dong Yook} and Kim, {Hae Rim} and Kim, {Hyoun Ah} and Jinseok Kim and Kim, {Seong Kyu} and Kim, {Sung Il} and Kim, {Tae Hwan} and Kim, {Tae Jong} and Eunmi Koh and Lee, {Choong Ki} and Lee, {Hye Soon} and Jisoo Lee and Lee, {Sang Heon} and Lee, {Sang Hoon} and Lee, {Shin Seok} and Lee, {Sung Won} and Lee, {Yeon Ah} and Nah, {Seong Su} and Park, {Sung Hoon} and Sheen, {Dong Hyuk} and Shim, {Seung Cheol} and {Gyu Song}, Gwan and Suh, {Chang Hee} and Uhm, {Wan Sik} and Yoo, {Dae Hyun} and Yoo, {Wan Hee} and Yoon, {Bo Young} and Bae, {Sang Cheol}",

note = "Funding Information: A large, nationwide cohort of clinically well-characterized RA patients is a valuable resource for high-quality RA research ( 4,5 ). The KORean Observational study Network for Arthritis (KORONA) was established in July 2009 by the Clinical Research Center for Rheumatoid Arthritis (CRCRA), funded by the Ministry of Health and Welfare, South Korea. KORONA uses a prospective protocol and standard, defined data collection instruments. Funding Information: This study was supported by a grant from the Korea Health care Technology R&D Project, Ministry of Health and Welfare , Republic of Korea ( A102065 ). ",

year = "2012",

month = jun,

doi = "10.1016/j.semarthrit.2011.09.007",

language = "English",

volume = "41",

pages = "745--751",

journal = "Seminars in Arthritis and Rheumatism",

issn = "0049-0172",

publisher = "W.B. Saunders",

number = "6",

}

Sung, YK, Cho, SK, Choi, CB, Park, SY, Shim, J, Ahn, JK, Bang, SY, Cha, HS, Choe, JY, Chung, WT, Her, M, Hong, SJ, Hong, YK, Joung, CI, Jun, JB, Jung, YO, Kang, YM, Kim, DY, Kim, HR, Kim, HA, Kim, J, Kim, SK, Kim, SI, Kim, TH, Kim, TJ, Koh, E, Lee, CK, Lee, HS, Lee, J, Lee, SH, Lee, SH, Lee, SS, Lee, SW, Lee, YA, Nah, SS, Park, SH, Sheen, DH, Shim, SC, Gyu Song, G, Suh, CH, Uhm, WS, Yoo, DH, Yoo, WH, Yoon, BY & Bae, SC 2012, 'Korean Observational Study Network for Arthritis (KORONA): Establishment of a Prospective Multicenter Cohort for Rheumatoid Arthritis in South Korea', Seminars in Arthritis and Rheumatism, vol. 41, no. 6, pp. 745-751. https://doi.org/10.1016/j.semarthrit.2011.09.007

TY - JOUR

T1 - Korean Observational Study Network for Arthritis (KORONA)

T2 - Establishment of a Prospective Multicenter Cohort for Rheumatoid Arthritis in South Korea

AU - Sung, Yoon Kyoung

AU - Cho, Soo Kyung

AU - Choi, Chan Bum

AU - Park, So Yeon

AU - Shim, Jeeseon

AU - Ahn, Joong Kyong

AU - Bang, So Young

AU - Cha, Hoon Suk

AU - Choe, Jung Yoon

AU - Chung, Won Tae

AU - Her, Minyoung

AU - Hong, Seung Jae

AU - Hong, Yun Kyung

AU - Joung, Chung Il

AU - Jun, Jae Bum

AU - Jung, Young Ok

AU - Kang, Young Mo

AU - Kim, Dong Yook

AU - Kim, Hae Rim

AU - Kim, Hyoun Ah

AU - Kim, Jinseok

AU - Kim, Seong Kyu

AU - Kim, Sung Il

AU - Kim, Tae Hwan

AU - Kim, Tae Jong

AU - Koh, Eunmi

AU - Lee, Choong Ki

AU - Lee, Hye Soon

AU - Lee, Jisoo

AU - Lee, Sang Heon

AU - Lee, Sang Hoon

AU - Lee, Shin Seok

AU - Lee, Sung Won

AU - Lee, Yeon Ah

AU - Nah, Seong Su

AU - Park, Sung Hoon

AU - Sheen, Dong Hyuk

AU - Shim, Seung Cheol

AU - Gyu Song, Gwan

AU - Suh, Chang Hee

AU - Uhm, Wan Sik

AU - Yoo, Dae Hyun

AU - Yoo, Wan Hee

AU - Yoon, Bo Young

AU - Bae, Sang Cheol

N1 - Funding Information: A large, nationwide cohort of clinically well-characterized RA patients is a valuable resource for high-quality RA research ( 4,5 ). The KORean Observational study Network for Arthritis (KORONA) was established in July 2009 by the Clinical Research Center for Rheumatoid Arthritis (CRCRA), funded by the Ministry of Health and Welfare, South Korea. KORONA uses a prospective protocol and standard, defined data collection instruments. Funding Information: This study was supported by a grant from the Korea Health care Technology R&D Project, Ministry of Health and Welfare , Republic of Korea ( A102065 ).

PY - 2012/6

Y1 - 2012/6

N2 - Objectives: The object of this study was to introduce the KORean Observational study Network for Arthritis (KORONA) registry with an emphasis on the design of the Korean rheumatoid arthritis (RA) national database, as well as to provide an overview of the RA patients who are currently registered in KORONA. Methods: The KORONA was established in July 2009 by the Clinical Research Center for Rheumatoid Arthritis (CRCRA) in South Korea. KORONA is based on a prospective protocol and standard, defined data collection instruments. Demographic and clinical features, laboratory and radiologic data, health-related outcomes, treatment side effects, resource utilization, and health behaviors of the RA cohort patients are recorded in a database. Results: A total of 23 institutions, which are about 38% of the rheumatologic departments at tertiary academic hospitals across South Korea, are part of KORONA. The quality control of data collection and management has been performed through annual monitoring and auditing, staff training, and providing standard operation protocol by the executive committee of CRCRA. As of 31 December 2010, 4721 patients with established RA were included in KORONA, because an annual survey had started to be performed in July 2010. Conclusions: KORONA is the first nationwide Korean RA-specific cohort and it will provide valuable "real-world" information for Korean RA patients.

AB - Objectives: The object of this study was to introduce the KORean Observational study Network for Arthritis (KORONA) registry with an emphasis on the design of the Korean rheumatoid arthritis (RA) national database, as well as to provide an overview of the RA patients who are currently registered in KORONA. Methods: The KORONA was established in July 2009 by the Clinical Research Center for Rheumatoid Arthritis (CRCRA) in South Korea. KORONA is based on a prospective protocol and standard, defined data collection instruments. Demographic and clinical features, laboratory and radiologic data, health-related outcomes, treatment side effects, resource utilization, and health behaviors of the RA cohort patients are recorded in a database. Results: A total of 23 institutions, which are about 38% of the rheumatologic departments at tertiary academic hospitals across South Korea, are part of KORONA. The quality control of data collection and management has been performed through annual monitoring and auditing, staff training, and providing standard operation protocol by the executive committee of CRCRA. As of 31 December 2010, 4721 patients with established RA were included in KORONA, because an annual survey had started to be performed in July 2010. Conclusions: KORONA is the first nationwide Korean RA-specific cohort and it will provide valuable "real-world" information for Korean RA patients.

KW - Cohort study

KW - Prospective study

KW - Rheumatoid arthritis

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Korean Observational Study Network for Arthritis (KORONA): Establishment of a Prospective Multicenter Cohort for Rheumatoid Arthritis in South Korea

Abstract

Bibliographical note

Keywords

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