Family Quality of Life: A Qualitative Inquiry

Denise Poston, Ann Turnbull, Jiyeon Park, Hasheem Mannan, Janet Marquis, Mian Wang

Research output: Contribution to journalArticlepeer-review

223 Scopus citations


In this qualitative inquiry we investigated the conceptualization of family quality of life. Focus groups and individual interviews were conducted with 187 individuals: family members (e.g., parents, siblings) of children with a disability, individuals with a disability, family of children without a disability, service providers, and administrators. Data were collected in urban and rural settings to elicit the participants' understanding of family quality of life. Ten domains of family quality of life were identified and described in terms of subdomains, indicators, and key points raised by participants. Implications are discussed in terms of future directions for research and family support.

Original languageEnglish
Pages (from-to)313-328+392
JournalMental Retardation
Issue number5
StatePublished - Oct 2003


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