TY - JOUR
T1 - A Qualitative Inquiry on Medical Service Improvement and Support Needs based on Medical Services and Self-Determination Experiences of People with Developmental Disabilities
AU - Lee, Suk Hyang
AU - Hong, Ju Hee
AU - Yeom, Ji Hye
N1 - Publisher Copyright:
© 2018 Korean Journal of Physical, Multiple and Health Disabilities.All rights reserved.
PY - 2018
Y1 - 2018
N2 - Purpose: The purpose of this study was to investigate medical service improvement and support needs based on medical service and self-determination experiences of people with developmental disabilities(DD) along with their families and facility service providers. Method: For this study, individual in-dept interviews were conducted with 11 adults with DD living in their home or facilities and their caregivers(5 family members and 6 facility service providers) who are selected as a pair. Also, a focus group interview was conducted with 5 family members having a family with DD. All collected data were analyzed using a constant comparative method. Results: From the qualitative analysis, seven main themes emerged as follows: (a) expression and recognition regarding illness, (b) health care methods and difficulties, (c) difficulties in medical treatments and services, (d) self-determination issues regarding health and medical care, (e) useful medical supports and tips, (f) methods and support needs to promote self-determination of people with DD, and (g) support needs to improve health and medical services. Conclusion: Based on the results, implications and future directions were provided to improve health and medical services for people with DD.
AB - Purpose: The purpose of this study was to investigate medical service improvement and support needs based on medical service and self-determination experiences of people with developmental disabilities(DD) along with their families and facility service providers. Method: For this study, individual in-dept interviews were conducted with 11 adults with DD living in their home or facilities and their caregivers(5 family members and 6 facility service providers) who are selected as a pair. Also, a focus group interview was conducted with 5 family members having a family with DD. All collected data were analyzed using a constant comparative method. Results: From the qualitative analysis, seven main themes emerged as follows: (a) expression and recognition regarding illness, (b) health care methods and difficulties, (c) difficulties in medical treatments and services, (d) self-determination issues regarding health and medical care, (e) useful medical supports and tips, (f) methods and support needs to promote self-determination of people with DD, and (g) support needs to improve health and medical services. Conclusion: Based on the results, implications and future directions were provided to improve health and medical services for people with DD.
KW - Health advocacy
KW - Health and medical services
KW - People with developmental disabilities
KW - Qualitative research
KW - Self-determination
UR - http://www.scopus.com/inward/record.url?scp=85062990764&partnerID=8YFLogxK
U2 - 10.20971/kcpmd.2018.61.2.45
DO - 10.20971/kcpmd.2018.61.2.45
M3 - Article
AN - SCOPUS:85062990764
SN - 2288-3843
VL - 61
SP - 45
EP - 78
JO - Korean Journal of Physical, Multiple and Health Disabilities
JF - Korean Journal of Physical, Multiple and Health Disabilities
IS - 2
ER -